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Family Support

  • We provide support to families impacted by CdLS though outreach services.  We connect families with others in their area or those with similiar challenges.  


  • We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.

CdLS Awareness

CdLS awareness is important to individuals with the syndrome, their families and their healthcare service providers and families.  This will increase understanding, appropriate approaches to care and access to services.


Early Diagnosis

Early diagnosis is essential in achieving a high quality of life.  Diagnosis will:

  • ensure appropriate diagnostic testing

  • ensure proper management of common health conditions associated with CdLS

  • enable access to early intervention services including speech and language therapy, occupational therapy, physiotherapy and other essential therapies

  • enable timely access to emotional and other supports to families

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