Behaviour Challenges in CdLS

There are various behaviours that may be present with an individual with CdLS.  The following resources can be helpful in understanding the responsive behaviours commonly seen in CdLS.

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New Publications

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An Observational Study of Social Interaction Skills and Behaviours in Cornelia de Lange, Fragile X and Rubinstein-Taybi Syndromes. 2020. Kathleen Ellis, Chris Oliver, Chrysi Stefanidou, Ian Apperly & Jo Moss. PDF here

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The behavioural and wellbeing of children and adults with severe intellectual disability and complex needs: The Be-Well checklist for carers and professionals.  Journal of Paediatric and Child Health - Oct. 2020. Chris Oliver, Hayley Crawford, Dawn Adams,  PDF here.

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ToolKits

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A Guide for Parents and Carers (2003)

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Video Series

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Neurodevelopmental Disorders Behaviour Management in CdLS (2019) Dr. Siddharth Srivastava, M.D.  Individuals with CdLS can be affected by a number of developmental disorders, including intellectual disability, autism spectrum disorder, language disorder, ADHD, aggression, repetitive self-injurious behaviours, anxiety, and depression. This webinar will discuss each of these domains as it relates to CdLS, as well as strategies for pharmacological intervention.

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How to Address Challenging Behaviour (2019) Julie O'Connor covers covering self-injury, impulse control, destruction of property, appropriate consequences & treatment options.

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