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Contact Us
Would you like to be connected with other families? You're not alone. Reach out for support if you or a loved one has been diagnosed with CdLS or you suspect they might have CdLS. We connect families with others in their area or those with similiar challenges.
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We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.
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We have regular family gatherings and virtual hang-outs to ensure geography will not make you feel isolated.
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