Would you like to be connected with other families?  You're not alone.  Reach out for support if you or a loved one has been diagnosed with CdLS or you suspect they might have CdLS.  We connect families with others in their area or those with similiar challenges.  

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We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.

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We have regular family gatherings and virtual hang-outs to ensure geography will not make you feel isolated.