Would you like to be connected with other families? You're not alone. Reach out for support if you or a loved one has been diagnosed with CdLS or you suspect they might have CdLS. We connect families with others in their area or those with similiar challenges.
We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.
We have regular family gatherings and virtual hang-outs to ensure geography will not make you feel isolated.