Support our work by donating.


Your donations will support our mission to ensure early diagnosis and high quality care through healthcare professional education.


You will help us continue our work in supporting families impacted by CdLS, often a lonely and challenging journey.

  • We do home visits, where welcomed, with new or existing families.

  • We send welcome kits to families and their child's school with information.

  • We organize family gatherings to connect and support families.

We are currently raising funds to send Canadian Families to the US National CdLS Conference in Tulsa, Oklahoma in June 2020.  The conference enables Canadian families to access CdLS specialists from all healthcare specialties to ensure appropriate treatment and management of CdLS.  It is also an event where over 100 families come together to support, share and learn.

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