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YES! I want to make a difference in the lives of Canadians born with Cornelia de Lange Syndrome.

Donate today and help Canadian children, youth and adults born with CdLS live their best life.


Your donations will support our mission to ensure early diagnosis and high quality care through healthcare professional education.


You will help us continue our work in supporting families impacted by CdLS, often a challenging journey.

  • We do home visits, where welcomed, with new or existing families.

  • We send welcome kits to families and their child's school.

  • We organize family gatherings to connect and support families.

  • Advocacy and consultation with individuals with CdLS and their care team and school teams.

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