top of page
![](https://static.wixstatic.com/media/3ac143_07cf0de725194bd499e7e3e335e768b3~mv2.jpg/v1/crop/x_0,y_91,w_1296,h_1296/fill/w_69,h_69,al_c,q_80,usm_0.66_1.00_0.01,blur_2,enc_auto/3ac143_07cf0de725194bd499e7e3e335e768b3~mv2.jpg)
Strategies to accomplish our mission
Find families impacted by Cornelia de Lange Syndrome (CdLS).
​
Raise awareness and improve early diagnosis of CdLS.
​
Empower families to care and advocate for their family member with CdLS.
Provide support, resources, and education to families, care providers, educators and clinicians of individuals with CdLS.
![Dyane Joanne Joanna and Scott.jpeg](https://static.wixstatic.com/media/3ac143_6ba767b3c6ad4549aac896173a78ae97~mv2.jpeg/v1/fill/w_123,h_82,al_c,q_80,usm_0.66_1.00_0.01,blur_2,enc_auto/3ac143_6ba767b3c6ad4549aac896173a78ae97~mv2.jpeg)
WHO WE ARE
We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS). We support families and caregivers, increase awareness and early diagnosis to ensure each individual with CdLS can lead a healthy high quality of life.
OUR ACTIVITIES
bottom of page