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SUPPORTING CANADIANS IMPACTED BY CORNELIA DE LANGE SYNDROME

Canadian CdLS Foundation
Mission Statement

At the Canadian CdLS Foundation, our mission is to ensure every child born with CdLS in Canada thrives from birth to old age.

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Strategies to accomplish our mission

Find families impacted by Cornelia de Lange Syndrome (CdLS).

Raise awareness and improve early diagnosis of CdLS.

Empower families to care and advocate for their family member with CdLS.


Provide support, resources, and education to families, care providers, educators and clinicians of individuals with CdLS.

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WHO WE ARE

We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS).  We support families and caregivers, increase awareness and early diagnosis to ensure each individual with CdLS can lead a healthy high quality of life.

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