Contact us
Would you like to be connected with other families?
You're not alone. Reach out for support if you or a loved one has been diagnosed with CdLS or you suspect they might have CdLS. We connect families with others in their area or those with similiar challenges.
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We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.
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We have regular family gatherings and virtual hang-outs to ensure geography will not make you feel isolated.
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Contact us at

East Coast
9 Families Connected
BRITISH Columbia
7 Families Connected
Alberta
5 Families Connected
ontario
47 Families Connected
quebec
30+ Families Connected
Nova Scotia
1 Family Found
New Brunswick
4 Families Connected
New Foundland & Labrador
5 Families Connected
Prince edward island
Saskatchewan
1 Family Found