416.317.0411

©2019 by Canadian CdLS Foundation. Proudly created with Wix.com

fullsizeoutput_3e61.jpeg

Dr. Jenni Glad Timmons RN. BScN. AltMBA. DNP.

Founder & CEO

Jenni is the founder and CEO of the foundation with over 20 years of nursing and healthcare leadership experience. She is also the mother of a child with CdLS. Through this experience she has realized the need to bridge the gap in providing much needed support, awareness and improving access to quality care for this rare population. She is currently an Adjunct Lecturer at the University of Toronto Lawrence S. Bloomberg Faculty of Nursing teaching in the Masters in Health Administrations and Leadership program & Nurse Practitioner program.  She can be reached at jenni@canadiancdlsfoundation.com

Julie Marineau

Provincial Family Coordinator - Quebec

Julie has been supporting Quebec families impacted by CdLS for a few years. She lives with her husband and three daughters in Terrebonne, Quebec.  Their daughter Melie was both with CdLS in 2015.

Julie Marineau

Provincial Family Coordinator - Quebec

Julie has been supporting Quebec families impacted by CdLS for a few years. She lives with her husband and three daughters in Terrebonne, Quebec.  Their daughter Melie was both with CdLS in 2015.

IMG_2001.JPG

Kim Fenton

Provincial Family Coordinator- British Columbia

Kim is the mother of an adult child with CdLS and has several years of experience navigating the BC health system, community services, high-school, independent living, and speech and language services.

Ariel Lalonde

Family Coordinator

Ariel is passionate about supporting and connecting new families recognizing how overwhelming and alone parents can feel. She is currently finishing her social services program.  Ariel is the mother of a young child, Mila, with CdLS and they live in Ontario.

Ariel provides support and coordination for the Provincial Family Coordinators.

ArielLalondeProfilePic.jpg
SarahOkeProfilePic.jpeg

 

Sarah Oke

Family Coordinator

Sarah is passionate about supporting families and especially parents of children with special needs.  From organizing parent meet-ups to house calls, Sarah finds ways to connect others in her empathetic and understanding way.  She is also the mother of a young child with CdLS.

Dr. Margaret (Peggy) Marcon MD. FRCPC

Medical Director

Dr. Marcon is a staff Gastroenterologist at the Hospital for Sick Kids in Toronto and an Associate Professor of Paediatrics at the University of Toronto.  Dr. Marcon has been involved with patients with CdLS for many years and has a special interest in children with CdLS.  Her clinical and research interests are in swallowing disorders and gastrointestinal motility.

Screen Shot 2019-02-24 at 3.09.58 PM.png

Dr. Laurie Ireland MD & Davey Ireland

Provincial Family Coordinators - Manitoba

Laurie and Davey provide support to families impacted by CdLS in Manitoba.  They have two children and their youngest son was born with CdLS.  They reside in Winnipeg, Manitoba.

Sarah Strathy-Alie, M.H.Sc. SLP (C) Reg. CASLPO
Speech-Language Pathologist

Sarah has worked as a speech-language pathologist for over 10 years. She has been privileged to work with several CdLS families over her career and is excited to join the foundation as a Rehab Professional. She is trained in the PROMPT approach to treating disorders of motor speech and the Hanen approach to working with parents and teachers to set and achieve goals in language and literacy. Sarah currently balances her work between the Toronto school board and her private practice.